NBER Coordinating Center on the Economics of AD/ADRD Prevention, Treatment, and Care.
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OTHER PROJECT INFORMATION – Project Summary/Abstract NBER Coordinating Center on the Economics of AD/ADRD Prevention, Treatment, and Care This application proposes to establish a coordinating center for economic research on Alzheimer's disease (AD) and AD-related dementia (ADRD) at the National Bureau of Economic Research (NBER). The consortium will encompass the 4-5 research project (R01) grants that are awarded under the NIA's companion program announcement on “Consortium for Economic Research on AD/ADRD Prevention, Treatment, and Care;” newly funded Center studies selected annually from a national competition and supported under the Center's research project core; the work of early career scholars selected for the Center's mentored scholars program; the NBER's ongoing and separately-funded projects on the economics of ADRD; and selected other research on ADRD that may be developed in the future. The underlying research projects that will be coordinated through the NBER Center will be organized, at least initially, around four overarching themes: (1) Emerging Challenges in Caregiving for People with ADRD, (2) Understanding ADRD Diagnosis and Progression, (3) Prevention and Treatment of ADRD, and (4) Disparities in Healthcare for Patients with ADRD. In cooperation with NIA, we will foster collaboration and synergies across consortium member research projects, initiate new high-impact research projects that apply economic methods to understanding and improving the treatment and care for people with ADRD; expand the network of researchers studying the economics of ADRD; and disseminate findings to key stakeholders to support policymaking. An administrative core will provide intellectual leadership and governance; centralized administrative, communications, and research support; support of early career investigators; and ongoing monitoring of performance metrics though a program tracking plan. A research projects core will support cutting edge research projects on the economics of ADRD prevention, treatment, and care. A stakeholder engagement core will assure that the research projects are informed by the on the ground experience of those working to prevent, treat and care for people living with ADRD and their families and caregivers. A closely related translation core will encourage the application of findings from consortium research in practical uses that improve the health and wellbeing of people living with AD/ADRD and their families; disseminating findings and research resources, and convening an annual conference in Washington, DC.
OTHER PROJECT INFORMATION – Project Summary/Abstract Translation Core (Core D) The goal of the Translation Core is to encourage the application of findings from consortium research in practical uses that improve the health and wellbeing of people living with AD/ADRD and their families and caregivers. Written materials that report on consortium findings are an essential building block for all aspects of the Center's translational infrastructure. We will build upon the NBER's existing research dissemination infrastructure, which includes a health-focused newsletter, the NBER Bulletin on Health. We will also compile an annual literature review that summarizes the most important scientific findings on the economics of ADRD prevention, treatment, and care, published each year by consortium researchers and others. Research resources will be disseminated through NBER's public use data archive at www.nber.org/data. The centerpiece of the translation core is an annual conference that brings together researchers, policymakers, government officials, advocates, and other stakeholders. The agenda for these conferences will consist of non-technical research presentations that summarize findings from consortium research, soliciting of input from attendees and then extrapolating their real- world implications for improving healthcare, caregiving, or other aspects of wellbeing for people living with ADRD and their families. We will also convene one or more annual workshops in conjunction with national organization conferences, such as the Alzheimer's Association International Conference, the Allied Social Sciences Associations annual conference, or similar gatherings. In all these translation activities, we will feature findings on the causes of health and healthcare disparities, and present actionable insights that promote health equity.
