Selected Publications

• article

  1. Frailty in Chronic Pancreatitis and Its Impact on Health Care Utilization and Inpatient Outcomes: A Nationwide Analysis..  Pancreas.  55:e204-e205. 2026
  2. Outpatient Utilization Patterns for Pancreatic Cancer Suggest Regional and Hereditary Disparities in Appalachian Versus Non-Appalachian Kentucky..  Pancreas.  55:e210-e211. 2026
  3. Participant Retention in a Prospective Multicenter Cohort of Participants With Pancreatitis and Factors Associated With Attrition..  Pancreas.  55:e162-e172. 2026
  4. When Pancreatitis Hits Hard: High Health Care Demands in Appalachian Kentucky..  Pancreas.  55:e207-e209. 2026
  5. Disparities in Chronic Pancreatitis Care in Appalachian Kentucky..  Pancreas.  55:e118-e119. 2026
  6. Navigating COPD and Bronchiectasis: A COPD Foundation Survey of Differences in Patient-Perceived Health Care Experiences by Sex..  Chronic obstructive pulmonary diseases (Miami, Fla.).  12:399-410. 2025
  7. Multimorbidity in dementia: Current perspectives and future challenges..  Alzheimer's & dementia : the journal of the Alzheimer's Association.  21:-. 2025
  8. Natural history and burden of refractory Mycobacterium avium complex pulmonary disease: Insights from the US Bronchiectasis and Nontuberculous Mycobacterial Research Registry..  Respiratory medicine.  -. 2025
  9. Health Inequities in Pancreatic Disorders in the Black/African American Community..  Journal of racial and ethnic health disparities.  2025
  10. Characteristics of exacerbators in the US Bronchiectasis and NTM Research Registry: a cross-sectional study..  ERJ open research.  10. 2024
  11. Physical and mental health trajectories: A longitudinal SF-36 analysis in Alpha-1 antitrypsin deficiency-associated COPD..  Respiratory medicine.  -. 2024
  12. Five-Year Outcomes among U.S. Bronchiectasis and NTM Research Registry Patients..  American journal of respiratory and critical care medicine.  210:108-118. 2024
  13. Healthcare disparities in pancreatitis: knowledge gaps and next steps..  Current opinion in gastroenterology.  40:422-430. 2024
  14. The Impact of Tobacco Smoking in Bronchiectasis: Data from the U.S. Bronchiectasis and Nontuberculous Mycobacteria Research Registry..  American journal of respiratory and critical care medicine.  210:128-130. 2024
  15. Financial Toxicity in Patients With Chronic Pancreatitis..  Pancreas.  53:e774-e779. 2024
  16. Nebulized hypertonic saline and positive expiratory pressure device use in patients with bronchiectasis: Analysis from the United States Bronchiectasis and NTM research registry..  Respiratory medicine and research.  -. 2024
  17. Long-Term SGRQ Stability in a Cohort of Individuals with Alpha-1 Antitrypsin Deficiency-Associated Lung Disease..  International journal of chronic obstructive pulmonary disease.  889-900. 2024
  18. Characteristics associated with SF-36 in alpha-1 antitrypsin deficiency-associated COPD: a cross-sectional analysis..  BMC pulmonary medicine.  24:-. 2024
  19. Severity of bronchiectasis predicts use of and adherence to high frequency chest wall oscillation therapy - Analysis from the United States Bronchiectasis and NTM research registry..  Respiratory medicine.  -. 2024
  20. Prevalence of Cardiovascular Disease and Rate of Major Adverse Cardiovascular Events in Severe Alpha-1 Antitrypsin Deficiency COPD..  International journal of chronic obstructive pulmonary disease.  149-159. 2024
  21. Health-related Quality of Life in Alpha-1 Antitrypsin Deficiency-associated Chronic Obstructive Pulmonary Disease..  American journal of respiratory and critical care medicine.  208:1132-1134. 2023
  22. Nontuberculous mycobacterial (NTM) infections in bronchiectasis patients: A retrospective US registry cohort study..  Pulmonary pharmacology & therapeutics.  -. 2023
  23. Quality of Life and Mortality Outcomes for Augmentation Naïve and Augmented Patients with Severe Alpha-1 Antitrypsin Deficiency..  Chronic obstructive pulmonary diseases (Miami, Fla.).  10:139-147. 2023
  24. Patient-Reported Pulmonary Symptoms, Exacerbations, and Management in a Cohort of Patients With Alpha-1 Antitrypsin Deficiency..  Chronic obstructive pulmonary diseases (Miami, Fla.).  9:549-561. 2022
  25. Stenotrophomonas maltophilia in patients with bronchiectasis: An analysis of the US bronchiectasis and NTM Research Registry..  Respiratory medicine.  -. 2022
  26. Pilot Study of a Patient Experience with an ELLIPTA Inhaler Electronic Medication Monitor and Associated Integrated System: A Prospective Observational Study Using the COPD Patient-Powered Research Network..  Chronic obstructive pulmonary diseases (Miami, Fla.).  8:488-501. 2021
  27. Self-reported COPD Medication Use and Adherence in the COPD Foundation Patient- Powered Registry Network..  Chronic obstructive pulmonary diseases (Miami, Fla.).  8:474-487. 2021
  28. Symptom Burden and Medication Use Among Patients with Nontuberculous Mycobacterial Lung Disease..  Chronic obstructive pulmonary diseases (Miami, Fla.).  8:243-254. 2021
  29. The Association of Long-term Macrolide Therapy and Nontuberculous Mycobacterial Culture Positivity in Patients With Bronchiectasis..  Chest.  160:466-469. 2021
  30. Home-Based Multicomponent Intervention Increases Exercise Activity and Improves Body Mass Index: Results of a 5-Year Randomized Trial Among Individuals with Alpha-1 Antitrypsin Deficiency-Associated Lung Disease..  Chronic obstructive pulmonary diseases (Miami, Fla.).  8:7-18. 2021
  31. Pseudomonas aeruginosa associated with severity of non-cystic fibrosis bronchiectasis measured by the modified bronchiectasis severity score (BSI) and the FACED: The US bronchiectasis and NTM Research Registry (BRR) study..  Respiratory medicine.  -. 2020
  32. Nutrition and Markers of Disease Severity in Patients With Bronchiectasis..  Chronic obstructive pulmonary diseases (Miami, Fla.).  7:390-403. 2020
  33. Airway Clearance Techniques in Bronchiectasis: Analysis From the United States Bronchiectasis and Non-TB Mycobacteria Research Registry..  Chest.  158:1376-1384. 2020
  34. The Burden of Cough and Phlegm in People With COPD: A COPD Patient-Powered Research Network Study..  Chronic obstructive pulmonary diseases (Miami, Fla.).  7:49-59. 2020
  35. Patient-Reported Consequences of Community-Acquired Pneumonia in Patients with Chronic Obstructive Pulmonary Disease..  Chronic obstructive pulmonary diseases (Miami, Fla.).  6:132-144. 2019
  36. The Clinical Features of Bronchiectasis Associated with Alpha-1 Antitrypsin Deficiency, Common Variable Immunodeficiency and Primary Ciliary Dyskinesia--Results from the U.S. Bronchiectasis Research Registry..  Chronic obstructive pulmonary diseases (Miami, Fla.).  6:145-153. 2019
  37. Comparing Patients with ZZ Versus SZ Alpha-1 Antitrypsin Deficiency: Findings from AlphaNet's Disease Management Program..  Chronic obstructive pulmonary diseases (Miami, Fla.).  6:29-39. 2018
  38. National and State Estimates of COPD Morbidity and Mortality - United States, 2014-2015..  Chronic obstructive pulmonary diseases (Miami, Fla.).  5:324-333. 2018
  39. Impact of donor lung pathogenic bacteria on patient outcomes in the immediate post-transplant period..  Transplant infectious disease : an official journal of the Transplantation Society.  20:-. 2018
  40. Genotype is associated with smoking and other key health behaviors among individuals with alpha-1 antitrypsin deficiency-associated lung disease..  Respiratory medicine.  48-55. 2018
  41. The Prevalence and Significance of Staphylococcus aureus in Patients with Non-Cystic Fibrosis Bronchiectasis..  Annals of the American Thoracic Society.  15:365-370. 2018
  42. Frequency of untreated hypogammaglobulinemia in bronchiectasis..  Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology.  119:83-85. 2017
  43. Benefits Among Patients with Alpha-1 Antitrypsin Deficiency Enrolled in a Disease Management and Prevention Program..  Chronic obstructive pulmonary diseases (Miami, Fla.).  4:56-64. 2016